This is my first blog, so bear with me. I don't know exactly what I'm doing yet. But thought I would give it a try. I have lots to communicate. I'm very involved with my Granddaughter, Delainey Belle. She has Trisomy 18, a genetic disorder where she has an extra 18th chromosome in every cell of her body. This condition causes all kinds of birth defects. She specifically has 2 heart defects, pulmonary hypertension and gastro/intestinal problems. She is very slow developing. However, she 16.5 months old now. She is a Miracle.
More later. Just getting started.
Susan <3
