Saturday, March 31, 2012


This is my first blog, so bear with me.  I don't know exactly what I'm doing yet.  But thought I would give it a try.  I have lots to communicate.  I'm very involved with my Granddaughter, Delainey Belle.  She has Trisomy 18, a genetic disorder where she has an extra 18th chromosome in every cell of her body.  This condition causes all kinds of birth defects.  She specifically has 2 heart defects, pulmonary hypertension and gastro/intestinal problems.  She is very slow developing.  However, she 16.5 months old now.  She is a Miracle.

More later.  Just getting started.

Susan <3